Governor Signs Dr. Pan’s Life-Saving Newborn Screening Bill

SB 1095 provides children with the best opportunity for an early diagnoses and treatment through newborn screenings

September 16, 2016

SACRAMENTO – Governor Brown signed SB 1095 today, bill authored by Dr. Richard Pan to require the Department of Public Health to expand the existing newborn screening program, ensuring that California babies get the earliest diagnosis and treatment possible for these life-threatening diseases.

“Rare diseases are often difficult to diagnose in time before permanent damage is done,” said Dr. Richard Pan, a pediatrician and Senator representing the Sacramento region. “This new law means that California will implement recommended newborn screening when an early diagnosis and treatment can prevent disability and save lives.”

Currently, California has to introduce new legislation every time a disease is added to the federal Recommended Uniform Screening Panel (RUSP).  SB 1095 removes the legislative delay, so California can rapidly implement the new screening and babies can have the earliest opportunity to receive lifesaving treatments.

Because of the rarity of these diseases, it can take more than seven years for a patient to receive an accurate diagnosis. Delays in diagnosis and treatment can cause severe cognitive and physical problems and even death. Early treatment can prevent the irreversible complications of the disease, providing cost savings to the state and ensuring better health outcomes for babies born in California.

California saves $9.32 in health care costs for every dollar spent on newborn screening.

“This new law will solidify California as a national leader in ensuring babies are screened for life-threatening rare diseases.  We, along with families across California are so grateful to Dr. Pan for his commitment to newborn screening, and to Governor Brown for signing this important legislation," said Julia Jenkins, Executive Director of the EveryLife Foundation for Rare Diseases, sponsor of the legislation.

The Secretary of the United States Department of Health and Human Services convenes a committee of newborn screening experts to develop a Recommended Uniform Screening Panel (RUSP). The federal process is rigorous, evidence-based, and science-driven, but ultimately states are not required to follow the recommendations. This results in babies in some states receiving timely diagnosis and treatment, while babies born in other states do not, with potentially life-threatening consequences.

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February 21, 2017

SACRAMENTO – Dr. Richard Pan, a former UC Davis faculty member and Director of the UC Davis Pediatric Residency Program, made the following statement regarding the selection of Gary May, Ph.D. as UC Davis Chancellor:

Senate Bill 267 to foster public trust in our political system by providing cost-effective oversight

February 9, 2017

SACRAMENTO – Dr. Richard Pan, a pediatrician and Senator representing the Sacramento region, announced today that he and Assemblymember Kevin McCarty have introduced a measure to allow the City of Sacramento to contract with the Fair Political Practices Commission (FPPC) to investigate and enforce the City’s campaign finance ordinance. 

SB 947 will focus staff time on moving families into the workforce and cut transportation expenses

September 29, 2016

SACRAMENTO – Senate Bill 947 to reduce red tape in the application process for the California Work Opportunity and Responsibility to Kids (CalWORKs) program was signed by the Governor today. 

Since 2009, applicants for the CalFresh program, which offers food to families in need, have had the opportunity to be interviewed over the telephone.  Conversely, applicants for the CalWORKs program must be interviewed in-person, even in counties that would rather conduct interviews over the phone to improve efficiencies and better utilize limited staff time.